Being a father of a child with a birth defect is much different than being a parent of child who is born normal. The education needed to understand how to deal with the abnormality, the process of requesting the assistance that has been assured to us by the medical community and the state. I already have spent over 40 hours alone on paperwork, social workers and phone calls just for the assistance. To say that this experience has been overwhelming would be an understatement to say the least. When i decided to write this blog i wanted to give the fathers point of view in regards to all the above and everything else relating to my son Nathan. However, after only a month and half of my son being on this earth i want to do more...
We are lucky as a family, we have good insurance that covers my son, maybe more than the next family. Not every family is as lucky as mine. I want to be able to help. assist other families who are less fortunate than mine to get the same medical options as my family. The only way to be able to assist and make that work is through raising money and awareness both locally and nationally. In the coming weeks i will be posting information about MiCleft the Michigan Cleft Network which is the he ONLY tax-exempt network that advocates for Michigan families affected by facial differences, and not the specific teams that service them... I am hoping to partner with them and help raise as much money as we can so that we can help ALL kids regain some formal of normal due to this birth defect and other facial differences.
I have attached a link to MiCleft -The Michigan Cleft Network
Stay Tuned and Happy Holidays
No comments:
Post a Comment